Pumpkin Macarons with Pumpkin Butter | Saving Room for Dessert
Pumpkin Macarons with Pumpkin Butter | Saving Room for Dessert
Not gonna lie I high fived every one of these.
OMG!!!!!!!!!! THIS CALLS FOR…. youtube.com/watch?v…
I KNOW WHO I’M DOING THIS TO!
Okay i know another person I want to do this to but it’s too dangerous to do to him. Even though he’d appreciate it.
I have 198 followers.
I have never been this close to 200 followers in my life.
Thanks for following me, everyone. Especially now. I’ve noticed there’s a lot more followers these days and I know it’s been the CRPS/RSD posts. And I’ve been loving the support and finding other spoonies who are going through the same stuff while we try to balance our lives.
I mean I wish we all could have kinda found we all have similar interests under better circumstances, but hey.
Snow White and Baymax :)
Because my pain level was low today, I headed over to the grocery store to restock my instant foods. With CRPS that tells my arm it’s a burning, useless limb with swollen fingers, instant food has become my sort of go-to since I no longer have the energy or skills to cook.
When I left the grocery store, I noticed a mother and her daughter. The daughter was playing the trumpet and she had a sign in front of her.
"I chose not to do the ALS Ice Bucket challenge so I have to play for awareness."
In front of her was an overturned hat, like she was some street musician looking for tips. And her mother stood next to her with her arms crossed and looked at the lack of crowd, while telling her just a few more songs in a not-so-pleasant tone.
And right there I was in shock upon seeing it and had to turn away to go shove the groceries into the family car, but as I was walking I just felt rage bubble up inside me.
How dare you shame your child for not wanting ice water poured all over her?
First of all, that’s not the point of the Ice Bucket challenge. For those brief moments, you get to feel what a debilitating disease like ALS is like. Hell, my CRPS feels somewhat like shoving your limbs into ice water, then never taking them out. Children are very, very susceptible to extreme temperatures and while a little ice water isn’t going to kill them?
It hurts. That hurts a lot. Why would you force your child to do something that hurts when they don’t have to? Just donate instead. Are you really so wrapped up in your social media bubble that you need your child to do the challenge to show off to your friends? That’s disgusting. Your child should do the challenge because they want to, not because you want them to.
Do not. Punish. Your child. With charity. That defeats the point of charity.
Also, why do you have a hat for tips? That’s your donation, not our donation. I donate to charities I like. You want to donate for ALS? You do it. Either you be financially responsible for your child, or she does chores around the house to make the donation she would like to. It’s not my job to answer for the child’s challenge. She’s your child. You take care of her and you educate her. Ah but you know, you’d rather be wrapped up in the social media aspect of it and you’d rather shame your child because she doesn’t want ice water dumped on her.
I am going to hope and pray that the poor child I saw remains happy and healthy and that mother will never have to know what it’s like to watch her child be in constant pain or lose the use of her limbs and start to suffer. My mother watches me struggle to open doors with my CRPS. I can’t lift anymore. Giving people hugs makes me cry in pain now. I can’t write like I used to and writing used to give me all that joy. Watching your child change from this happy person to learning how to function with pain and the loss of a body is soul-sucking.
And she’s LUCKY her daughter doesn’t have ALS. She’s LUCKY her daughter can stand there and play the trumpet with the use of her fingers and stand up straight. She’s lucky her daughter can take these deep breaths and not have to have extra aid from oxygen tanks.
This horrible woman shamed her daughter for not wanting to take the Ice Bucket challenge and then expected other people to pay for the donation she would have had to make anyway. I was just disgusted. As someone with chronic pain that has no cure (and with little funding and awareness to my own struggle) I was very offended.
What a terrible human being. I have a lot of pity for that little girl since she has a mother like that. I can only imagine what her life is like.
Pinocchio on Flickr.
AvaLynn was attacked by another student on the school playground. We are fighting for answers and for greater supervision at school.
My friend Lacey Harris’s 5 year old daughter was brutalized by another child on the playground at school this week, in Pascagoula, Mississippi. Her face is swollen and bruised beyond recognition, and the only thing the school can tell her is that they “are investigating”
This sweet little 5 year old girl is terrified to return to school. She is in pain and she has been MAIMED. This needs IMMEDIATE media attention. The school and local news are ignoring the mother’s and loved ones’ cries for help. This family needs justice for what has been done to their poor little angel, and not just to be swept under the rug, as the school district is attempting to do. PLEASE shine some light on this situation and force school administration and news media to get some answers!
The mother has started a GoFundMe page to request help for paying medical bills and legal fees, as it looks as though she’s going to have to pursue this route in order to get any justice at all for her little girl. Please, please, share this link on your page. Even if people are unable to donate, please just help us get the word out on what is going on with this poor family.
This is really heartbroken for me and extremely hard to look at.
This is the link to Ava’s donation page.
Please donate and share and PRAY!
God bless you all!
This is absolutely outraging. My heart hurts looking at this.
Oh my god
Children are my soft spot. I just read a news report about this sweet little girl. She’s going to need a lot of treatment…and she’s only five years old. What child deserves this to happen to them?
From what I understand is that NO TEACHERS WERE PRESENT when this poor baby was hurt. No supervision on a playground?! Anything can happen! An older student can severely hurt a younger student!
Police are shrugging their shoulders and going, “Well kids…” and that’s not good enough. KIDS? Kids don’t do this to each other! Monsters do this to each other and sniveling weasels let the little monsters get away with it! At least the school is looking into it but without anyone having seen it, you just get into a he said, she said…even though it’s very obvious AvaLynn was attacked.
I’m short on funds at the moment, but I’ll be reblogging this.
Oh and by the way, what’s not nice is all of the horrible people posting hateful messages.
This is a little girl going through a very tough time. Her family doesn’t deserve that.
They are very close to the $10k mark and that will help with a lot of bills. But maybe we can do something better.
Hallucinations courtesy of my pamelor and topamax working together to prevent my migraines from coming back.
Hey at least it’s working.
have you ever had to restart a song because you spaced out and weren’t appreciating it enough
the producers of The Giver sitting around choosing to make huge plot changes and choosing to add romantic subplots and I’m over here like
The best costume spotted at Disneyland’s 10k race today. [adamlc6]
He’s got a knife! RUN!
I have it (as you know)
I’m constantly amazed how many people I find online and how many people in real life I bump into who are familiar with it in some way.
But on the flipside, getting treated like I’m Lady Gaga at Uni of Penn was pretty unsettling, too. I know tumblr makes it easier to find people in your group, but considering I know two people with CRPS and we’re all in SOUTH JERSEY it makes me go WHAT THE HELL IS IN OUR WATER?